Data Ethics and Participatory Research: CARE Principles and CARE-informed Fieldwork Practices

Join us for an interactive workshop of the Open Science Community Rotterdam (OSCR) in collaboration with the International Institute of Social Studies (ISS) and taught by Bora Lushaj (Erasmus University Rotterdam) and Pascal Flohr (Leiden University Libraries).

Date
Wednesday 9 Dec 2026, 12:30 - 16:30
Type
Workshop
Spoken Language
English
Location

ISS, Den Haag, Aula A

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Abstract

Data ethics is a rich research field that has produced a range of conceptual and governance frameworks (Floridi & Taddeo, 2016; Leonelli, 2016). Applying these frameworks in the course of research, however, raises questions that remain unresolved and that often depend on the specific project and institutional setting.

One of these concerns data access, sharing, and reuse in participatory and engaged research, where interests and risks exist at both the individual and the community level. The CARE Principles for Indigenous Data Governance (Collective benefit, Authority to control, Responsibility, Ethics), published by the Global Indigenous Data Alliance in 2019, together with CARE-informed data practices (Lushaj et al, 2026), offer a direction for addressing such questions.

This workshop explores that direction through case studies and group work, focusing on research with a fieldwork component in the broadest sense. How do you decide which data to share and which to withhold? Are you actually the one to decide, and if not only you, who else should be involved?

Target audience

Researchers, including PhD candidates and research masters, carrying out participatory research and fieldwork or doing research involving fieldwork or fieldwork-derived data, researchers carrying out or interested in engaged research; of any institute of higher education in the Netherlands.

Learning objectives

At the end of the workshop, the participants will be able to:

  1. Outline several core ethical principles related to data ethics with a particular focus on fieldwork data (Flohr et al., 2026)
  2. Outline the CARE principles and discuss how these fit in with participatory and engaged research methods (especially in relation to benefit sharing and data sharing and governance)
  3. Interpret different elements of the CARE principles and start setting out feasible paths for implementing these and/or CARE-informed data governance in case studies or own research

The participants will also have learned from the other participants’ experiences.

Programme 

TimeTopicActivity
12:30-13:00Walk-in, Lunch (Vegetarian/Vegan),
Welcome
13:00-13:30Problem statementIntroduction to key concepts in data ethics, CARE Principles, and practical bottlenecks when applied to fieldwork, participatory and engaged research
13:30-13:45Open discussionParticipatory and Engaged Research: Different Working Definitions?
13:45-14:15Case studiesCase study stories
14:15-14:30 Coffee break
14:30-15:30The CARE principles and CARE-inspired data governance as a framework for ethical data governance

Integrate this into own research and/or provided scenarios, in smaller groups

Followed by discussion with the whole group & time for questions

15.30 - 15.45Coffee break
15:45-16:15What fieldwork taught me that I did not learn in schoolAn invitation to storytelling for all participants (Chatham House Rule)
16:15 – 16.30Wrap-upLooking forward & Further Readings

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